Together When It Matters Most.
Inspired by Seth, a lifelong connector who brought people together when it mattered most, Legacy of Connection Foundation is a charitable nonprofit transforming human connection into real financial support for individuals and families facing life‑threatening and terminal illnesses—starting with ALS.
Everything we do gives back. Many gifts are matched or doubled, multiplying impact when it’s needed most.
Our Upcoming Events
CX Pharma Swing for Seth – Indoor Social
March 23 | 5:30 PM | The Back Nine, Princeton – Kick off Pharma CX week with purpose at Swing for Seth, an intimate networking evening where meaningful connections drive real impact. Join pharma leaders for golf, conversation, and community as we come together to honor Seth and support families facing serious medical challenges—because connection matters most when it’s human.
Pharma CX Summit – Donate Event for Seth
CX Pharma Event | March 24–25 The Pharma CX Summit brings together innovators across pharma and healthcare—and this year, your participation goes further. Donate to support Seth through the Legacy of Connection Foundation, helping provide financial relief to individuals and families navigating life‑threatening illness. Learn, connect, and make a difference.
Signature Event: Swing for Seth – Human Only Invitational
Our signature fundraiser, Swing for Seth: Human Only Invitational, is more than a golf event—it’s a living expression of Seth’s legacy. Designed to spark authentic connection and collective generosity, this invitational brings together the pharma community to turn relationships into lifelines and honor what it truly means to show up for one another.
March
Pre Pharma CX Conference
Human Only Golf Social
Mark your calendars for March 23rd
May
Swing for Seth
Human Only Golf Invitational
Mark your calendars for May 19th!
Swing for Seth – Human Only Golf Invitational
Swing for Seth is more than a golf event—it’s a living expression of the Legacy of Connection Foundation’s mission. On May 19, supporters, colleagues, and friends will come together for a day built around connection, community, and impact. Created to honor Seth’s legacy of bringing people together with purpose, Swing for Seth transforms a shared experience into direct support for supporting Seth and individuals and families facing life‑threatening or terminal illness. Every swing, conversation, and contribution helps turn human connection into tangible financial relief—because no one should face these challenges alone.
Who We Are
Legacy of Connection Foundation is a registered 501(c)(3) charitable organization created to honor a remarkable colleague whose life embodied compassion, generosity, and the power of authentic human connection—even in the face of terminal illness.
We exist to support people within the pharmaceutical, biotech, and healthcare communities who are facing overwhelming medical and caregiving costs. Through direct financial assistance and experience‑driven fundraising events, we help ensure that no one has to face these challenges alone.
We are a charity in every sense of the word—mission‑driven, people‑first, and built entirely to give back.
Our Mission
Our mission is to carry forward a legacy of connection by providing critical financial support to individuals and families burdened by medical expenses related to life‑threatening or terminal illnesses.
We do this by:
- Delivering direct charitable assistance where insurance falls short
- Creating meaningful events that turn connection into impact
- Mobilizing corporate and community partners to multiply giving through matching programs
- Building a trusted, transparent nonprofit that puts people before process
Because connection isn’t just emotional—it’s lifesaving.
Seth’s Story: The Heart of Our Foundation
Seth is the reason this foundation exists.
Known for bringing people together, opening doors for others, and leading with empathy, Seth continued to live those values even while facing ALS. His journey revealed not only the emotional toll of terminal illness, but the crushing financial reality families face every day.
Legacy of Connection Foundation was born from the belief that what Seth gave to others—connection, generosity, and presence—should continue to give back.
By supporting Seth and others like him, we transform personal legacy into collective action.
The Reality of ALS
ALS is devastating—physically, emotionally, and financially.
Families often face:
- Six‑figure annual costs for care
- Expensive medical equipment and home modifications
- Lost income for both patients and caregivers
- Out‑of‑pocket expenses not covered by insurance
The burden doesn’t stop with a diagnosis—and it shouldn’t be faced alone.
This is where charitable support becomes essential.
How We Help
Legacy of Connection Foundation provides support in ways that matter most:
Direct Financial Assistance
Helping offset medical bills, caregiving costs, equipment, and essential living expenses.
Experience‑Driven Fundraising Events
Purposeful gatherings that bring communities together while raising meaningful funds.
Corporate & Community Partnerships
Sponsorships and matching‑gift programs that often double or triple donations.
Human‑Centered Impact
Every dollar raised is tied to real people, real needs, and real outcomes.
Why Give Through Legacy of Connection Foundation
When you support Legacy of Connection Foundation, you’re not just donating—you’re multiplying impact.
- We are a registered charitable nonprofit
- Funds go directly toward patient and family support
- Many donations qualify for employer matching programs
- Events and sponsorships are designed to maximize giving—not overhead
This is philanthropy with purpose, transparency, and heart.
Legacy of Connection Foundation made giving feel deeply personal. Knowing my employer would match my donation dollar‑for‑dollar made it even more powerful. Being able to give back—and double the impact—to support people when they need it most is something I’m truly proud to be part of.
Participant for Swing for Seth
This is what meaningful giving looks like.
Legacy of Connection doesn’t just raise money—it creates real human impact. The fact that I could leverage my company’s matching program to double my contribution made the experience even more rewarding. Giving back has never felt more purposeful.
Participant for Pharma CX
I was looking for a way to help Seth—and I finally found it.
Legacy of Connection Foundation gave me a meaningful way to show up when it mattered most. Being able to contribute, and then double my impact through my employer’s matching program, made giving feel powerful and personal. This foundation turns care into action.
Participant of Pharma CX
Be Part of the Legacy
You don’t need to know someone with a terminal illness to make a difference.
You just need to believe in showing up for others.
Donate. Sponsor. Participate. Share.
Together, we turn connection into lifelines—and ensure that generosity continues long after one story begins it.
Legacy of Connection Foundation
Together When It Matters Most